Welcome to I-CAH

NEWS

Read about all the latest news and events happening at I-CAH here. If you have any questions or are looking for a particular event please contact us.

  • New research studies

    24/Nov/2015

    Two new studies are underway that will be supported by the newly developed longitudinal module in the I-CAH registry:  Management of Fludrocortisone and salt therapy in 0-3 year old children with congenital adrenal hyperplasia (CAH) (Claahsen, ...

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  • I-CAH project group meets at ESPE

    01/Oct/2015

    Members of I-CAH and other active users of the I-CAH/I-DSD registry met at ESPE in Barcelona on 1st October 2015.  The group identified 2 studies that will be rolled out over the coming months.  The group will meet again by teleconference on 26th ...

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  • I-CAH longitudinal module launched

    24/Sep/2015

    A new longitudinal module has been developed in the I-CAH registry.  The CAH Visits module collects data on sick day episodes, adrenal crises and treatment changes as well as more routinely collected clinical data at subsequent visits.  The module...

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  • Launch of I-CAH Network Website

    10/Nov/2014

    Sheffield, UK.  The I-CAH Network website has now been launched.  The I-CAH Network is an initiative to improve the clinical management of Congenital Adrenal Hyperplasia (CAH) and its aim is to provide information and resources for both patients a...

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  • TAIN Reports Successful Infacort® Trial

    04/Dec/2013

    Cardiff, UK.  The TAIN Consortium funded by the European Commission (FP7-HEALTH No: 281654) announced that a clinical trial of Infacort® (immediate release hydrocortisone granules for paediatric use) successfully achieved its primary outcome of de...

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  • Inaugural Meeting of the I-CAH Network Executive

    23/May/2013

    Macclesfield, UK. The first meeting of the I-CAH Network Executive took place in Macclesfield, UK and brought together clinical experts in Congenital Adrenal Hyperplasia (CAH) and patient groups from across the world. The meeting was initiated by ...

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